Ride to Support Chelsea's Lung Transplant

Addresse277 Eisenhower Parkway
CountyColumbia (NY2961)
277 Eisenhower Parkway
Columbia (NY2961)
Tel 2017-12-16
Categoria Events
Ride to Support Chelsea

Ride + Donate Link: https://livingston.cyclebar.com/class-detail/?apptid=4188385 Donate Only Link: https://livingston.cyclebar.com/checkout/?packageID=100204 Chelsea Gaynes is a writer, poet daughter, friend cousin and lover of life. From an early age she has dreamed of traveling the world, living a big life and growing old surrounded by the people she loves and bringing light and joy into the lives of others. At the tender age of 16 when most kids are just beginning to discover who they are and think about their futures, Chelsea was diagnosed with a rare disease – Lymphangioleiomymatosis or LAM. People like Chelsea who suffer with LAM experience fatigue, shortness of breath, persistent cough and coughing up of blood, severe chest pain, pneumothorax (lung collapse), pleural effusion (fluid in the space that surrounds the lungs), and angiomyolipoma (kidney tumors).

Without medical intervention, deprived of oxygen LAM sufferers suffocate. Sadly, there is no cure for LAM. Only drug treatments which slow the progression of the disease and lung transplantation. In 2014, Chelsea was referred to the Lung Transplant Program at New York Presbyterian Hospital/Columbia University Medical Center as her lung function continued to decline and oxygen requirement increase. After evaluation she was waitlisted for transplant after two years of waiting, Chelsea was dual listed for transplant at the Hospital of The University of Pennsylvania and in September 2016 she underwent bilateral lung transplant. For the first six months following transplant Chelsea seemed to be recovering well and healing from the surgery until contracting Respiratory Synctial Virus (RSV), a type of bacterial infection called Clostridium Difficile (CDIFF) and several bouts of pneumonia.

Eventually Chelsea began to experience Antibody Mediated Rejection (AMR) – her body was rejecting her new lungs. The infections and AMR have caused irreversible damage to Chelsea’s lungs. Her only hope is a second bilateral transplant. As difficult as Chelsea’s journey has been and despite the road ahead, Chelsea continues to be a gift of light to all who know her and an inspiration to those who are also facing challenges. Still, the years of illness, hospitalization, treatment and transplant have exacted a heavy toll on her family, and especially her mother Nicole who Chelsea’s sole caregiver due to the passing of Chelsea’s father years ago. As loving mother and caregiver, Nicole has devoted the vast majority of her time and energy to Chelsea’s care.

This ride is a chance for those of us who love Chelsea and Nicole to help lift them up and lighten their load. In doing so, we hope to inspire others to do likewise.

Hey Sis. Having trouble with the site to ride and donate... anyone else experiencing problems creating their acct? I'm going to them tomorrow to complete my registration... just fyi in case anyone else is having an issie. See you there

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