Cure CRV Extravaganza and Mouse Races
Last year was such a succes, we decided we’ll do it again this year. Welcome to the 2nd annual Cure CRV Extravaganza and Mouse Races. For those that are new to this event --- A member of the supplier community, Kim Garrison Morey, has Autosomal Dominant-Retinal Vasculopathy with Cerebral Leukodystrophy (AD-RVCL) or CRV. CRV is an inherited disease that affects the small blood vessels, particularly those supplying the retina as well as other parts of the brain. Over a five to ten year period, there is a progressive loss of visual acuity and multiple small brain infarcts leading to neurologic deficits and eventually death. Doctors at Washington University in St. Louis have been researching this, and over the last two years have begun to see exciting results. This is a continuing research project, but the good news is that, the doctors in St.
Louis are hard at work to find the latest breakthroughs that could one day potentially cure CRV. Kim’s middle child, Tyrus, was diagnosed with CRV in September of 2017. All three of Kim’s children have a 50/50 chance of inheriting this disease. Kim's main concern is that a cure is found before her three children reach the age where symptoms begin to show. COME ENJOY A NIGHT OF DINNER AND DANCING WITH FRIENDS. DINNER SERVED BY TAVOLA TRATTORIA DANCING DJ OPEN BAR SILENT AUCTION MOUSE RACES HELP US FIND A CURE FOR CRV. YOU CAN ALSO FIND US AT CURECRV.COM.
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