2400 Feet of Schweitzer 2019

CountyBonner (ID1628)
Official Website
Bonner (ID1628)
Tel 2019-03-23
Categoria Events
2400 Feet of Schweitzer 2019

2400 Feet of Schweitzer is a unique sunrise top to bottom giant slalom event beginning at the Sky House lodge at the summit of Schweitzer and finishing at the Outback lodge at the base of the mountain, 2,400 vertical feet and nearly 2 ½ miles of skiing.  The race is for alpine, telemark skiers and snowboarders of all abilities.  The unique format of the race will allow for passing even though the run is timed.  Seeding for the race will also be unique as participant fundraising efforts will determine which seed they will start in (ie.- the top 10 fundraisers will start in the 1st seed, etc.)  Seeds will be sorted randomly based on skiing ability to limit the amount of passing that will occur on course. Although there will be teams of 2 or 4 people, fundraising will be tracked at the individual level, and will only count towards that individuals start seed.  After the race at 9:00am an exclusive breakfast will be served at the Outback Lodge.  Teams will ski and ride for prizes, bragging rights and most importantly fundraising for Cystinosis research and Hank’s future.  On Saturday evening after the event there is an awards party and auction that includes food from around the world.   Limited to 200 participants.

Race Categories: 2 Person Teams or 4 Person Teams Seeding Money raised until Thursday night at 5 PM PST will count for race starting position ** Bring in $750 in donations and receive a 2,400 Feet of Schweitzer jacket. Prizes Team prizes for each category Age prizes Top fundraiser – You will want to win this.  Cut off Saturday at 12:00pm  How to Register:  Online Each team member must register. Payment Entry fees and donations to teams can be made online or by check (payable to 24 Hours for Hank).  What’s included in entry fees: All day Lift access Event t- shirt Breakfast at the Outback Lodge Limited hotel discounts at the Selkirk Lodge. One ticket to Awards Dinner & Silent Auction on Saturday night. Additional Dinner & Silent Auction tickets are available   What is Cystinosis? Cystinosis is a rare metabolic disease that affects approximately 500 people in the United States (mostly children), and about 2,000 people worldwide.
This disease causes the amino acid “cystine” to accumulate in the cells of the body. Over time, the cystine damages various organs including the kidneys, liver, muscles, white blood cells, eyes, and central nervous system. Other complications include muscle wasting, growth loss, difficulty swallowing, and developmental delays. Termed an “orphan disease,” Cystinosis is a disorder which has not been “adopted” by the pharmaceutical industry because it provides little financial incentive for the private sector to make and market new medications to treat it or prevent it. There is a medicine that prolongs the lives of Cystinosis sufferers, but there is no cure. Cystagon, the powerful medication used to treat Cystinosis, must be consumed every six hours.
But the medicine’s severe side effects and demanding dosing schedule, for which parents must awaken children nightly from their sleep, often results in poor compliance. Eye drops are available to stop the painful accumulation of cystine crystals on the corneas but they must be refrigerated and taken every waken hour.  Children with Cystinosis generally appear normal during the first 9-10 months of life. By one year of age, symptoms occur including excessive thirst and urination, failure to thrive, slow growth, metabolic acidosis and other chemical and renal tubular abnormalities.  Children often appear pale and thin and have short stature. The abnormally high loss of phosphorous in the urine leads to rickets. After one year of age, cystine crystals appear in the cornea and cause a severe sensitivity to light (photophobia).
Due to the rigorous 6 hour schedule of taking 5 different medications the children always feel the way you or I would right before we “bonk” or hit the wall.  Dehydration is always a concern.  In time, patients can develop problems such as hypothyroidism, severe muscle weakness and central nervous system complications. These children have normal intelligence, but have an unusual defect in short-term visual memory. Many have poor GI motility.  Cystagon TM causes hyper secretion of gastric acid, resulting in gastric distress..

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